Showing posts with label parenting. Show all posts
Showing posts with label parenting. Show all posts

Thursday, February 19, 2015

All because she's learning how to dial 911

I always realized Sunshine triplet was dramatic, but she may have reached a new high this week. Recently we've been talking to her about emergencies and how she needs to know how to dial 911 in an emergency situation if Mommy or Daddy or an adult can't do it. Like if something happens like Mommy falls down the steps, hits her head and can't wake up. You dial 911. Great skills, right?

Yesterday at school, the first day back after a 4 day weekend, she shared her news of the weekend with her teacher (perhaps even the class). Here's her imagination hard at work: "On the stay at home days my mom fell down the stairs and wouldn’t wake up. I kept trying to wake her up but she didn’t. when she was falling she told me to call 911. My dad came home and took her to the hospital. The doctors are trying to wake her up and then she will come home." (she got teary as she told the story!)

I love how I knew I was going to fall into a coma on the way down the stairs so I very logically told my daughter to call 911 before I actually hit my head! Too cute!

Perhaps the best/funniest part is how I heard about it all. I sent an email with basic info to the teacher today and her reply back was: HOW ARE YOU? Are you out of the hospital? We're worried.

I couldn't reply back for at least 10 minutes because I was laughing so hard.

Friday, October 3, 2014

Slippery Fish or It's the little things that aren't so little after all

If you've never experienced kids with delays or special needs this might not mean much to you. If you know the struggle of meeting even one milestone amidst delays, read on.

While going potty this morning, Angel triplet (yes, I did say GOING POTTY) starts singing this song and doing the motions. Then her sister Princess triplet joins in. Yay for ABA therapy and for daily progress!
https://www.youtube.com/watch?v=45VuWNq3cjs

Monday, September 8, 2014

Everyday Confetti - Book Review

This year round guide to celebrating holidays and special occasions offers ideas and recipes for both major and minor events. Throughout its 12 chapters the authors, Karen Ehman and Glynnis Whitwer, provide readers with a constant stream of ways to integrate the Christian faith into daily life with fun and excitement.

The goal is to create lasting memories that instill Christian values into your children throughout their lives. Appropriately then, many of the holidays are from the traditional church calendar and those that originate from a secular origin are given a Christian slant. This is a book written by Christians and mostly meant to be used by those of the same belief system. The authors are connected with Proverbs 31 Ministries which has the mission to help women deepen their relationship with Jesus Christ.

An autism mom's thoughts

When I was provided this book by the publisher, Revell a division of Baker Publishing Group, I was specifically asked to review it from the perspective of a mom or family raising kids with autism. So as I was reading, I simply asked myself the following questions: Would this integrate well in our household? Do I know of other autism families that could utilize this idea? would it be worth it for an autism family to purchase this book? Is this particular idea enough? Are there enough ideas that could easily be implemented in an autism family?

The answer to most of those questions is a resounding MAYBE. While there are plenty of times the authors expressed that readers should adapt ideas to fit their own families (and gave examples on how they did just that themselves), there wasn't even a single example of a family with special needs considerations utilizing any of the ideas. So, if you do have kiddos with special needs, autism, developmental delays or any other similar challenges, you should plan on having to adapt nearly every idea to fit into your family's world. Of course, that in and of itself is not unusual for an autism family (or a family with twins, triplets or more for that matter), but it is a situation that gets old when it's constant. Sometimes it's just nice to have something actually FIT in your world. This book will not alleviate any of that frustration, in fact, it may simply add more. It is however a creative spark and if that's all the authors intended then they succeeded.

What I liked

1. An encouragement to live with intentionality

The authors say in the Forward, "Life goes by too quickly and at the end of the year we can look back and wish the simple moments had been celebrated more. We wish there'd been a few more pauses. We wish we'd made more opportunities to look into the eyes of someone we love and say, with words and actions, 'You matter. I value you.' ..."It's the little touches that say, 'I remembered.' It's celebrating effort. Rejoicing together in success. Supporting each other when discouraged. These are the times that weave our hearts together."

Personally I need constant reminders to live with intention. Why? My world is filled with managing occupational, ABA, and speech therapy appointments (times 2), constant mad dashes to pull something out of Angel triplet's mouth, countless trips to the potty that still end less than successfully (times 2), transitioning into a parent of an adult at the same time as parenting kindergartners, and all the other variables and levels of chaos that only an autism family with triplets could enjoy every day. Reflection and Intention fall victim to Survival and Urgency every single damn day. While a reminder to live with intentionality doesn't mean I will do so to the level I really desire, it does help me re-focus my mind at least for a while.

2. Celebrating dinnertime and birthdays

For me the first way of being intentional in honoring your family is by protecting and encouraging dinner around the table together. The tradition of eating together as a group brings about more than a tendency for healthier eating habits, it also provides a consistent opportunity for communication and support. Dinnertime was really important when I was growing up too and while I believe strongly in the concept, the actuality of it in my current family is less consistent than I like.

In the first chapter, the authors suggest some ways to celebrate each family member (both in a birthday situation and also just because) and it also elevates the dinnertime tradition at the same time. One of these that I really liked was having/using a Family Honor Plate that a family member would get to use at special times throughout the year (you choose the times). Use it as positive reinforcement for desired behaviors, the passing of milestones, or simply to say "We love that you're part of our family." Make the plate somehow special, you could even decorate it at one of those paint your own pottery places.

Another idea mentioned that's similar to the honor plate is to celebrate each family member on their own name day. Some names actually correspond to feast days and you can use that day as an honor day for that family member. There is an American calendar for name days as well, but if your family member's name isn't on it, just make up their own special name day.

There is a whole chapter devoted to birthdays which can be a difficult day to celebrate for many kids with autism. Delays in social awareness, communication and relationship building are common for many kids with autism, so birthday parties and other celebrations can be quite overwhelming and complicated to plan. In the birthday chapter, I found some ideas (like creating a special place mat or tablecloth with pictures of the family member to honor) could be easily used to make a special day a little more special without causing too much chaos. That's a huge win for an autism family.

3. Christmas evaluation

The authors propose a wonderful idea to help reduce the stress and craziness of the Christmas holiday season. They suggest a family meeting before the season begins. To do what? Simplify and make sure what you're doing is right for your family. You can help assign tasks and make sure everything you're doing is truly meaningful for your family. I am definitely doing this idea this year, because with one child at college, I know our holidays are undergoing a whole new perspective.

"Gather everyone around the kitchen table to answer questions about your family celebration. Encourage everyone to be honest with their responses and promise no hurt feelings. The goal is to discover your unique way of celebrating the holidays and help alleviate some of the Yuletide 'Yikes!'"

4. Trove of ideas

As I read through Everyday Confetti, I marked up the book - things I liked and things I didn't, questions, comments, sometimes I even carried on a conversation with the authors (well, one-sided anyway) and basically made the book my own. I went back and counted up the ideas I found interesting and potentially fun enough to figure out how to do in my own family. After counting up the "I want to try this" notations, I came up with 34 ideas which doesn't include any of the many yummy-sounding recipes. The book offers anywhere from 5 to 10+ recipes per chapter (and there are 12 chapters). So even for an autism family I found 34 ideas that I'm interested in exploring plus I know I will want to try some of the recipes. That's not too bad for a 182-page book.

What I didn't like

1. Narrow perspective

If you are hoping this book will broaden your perspective or horizons around holidays, you need to know it probably won't. It may provide new ideas, but always from within the same cultural perspective. What is that perspective, you ask? Well, I couldn't see that anything was coming from anywhere besides a nearly complete white bread, Protestant Christian, middle class, American, suburban to rural perspective overall. Okay, so yes, the Tripped Up Castle is filled to the brim with white, Protestant Christians, but I don't want to raise my kids with the idea that this perspective is the only one that matters. 

I will credit the authors for at least mentioning other groups, but it seemed to be from the tone of we need to understand our other brothers and sisters and their culture so we should celebrate Black History Month, Native American Day, Cinco de Mayo. It came off as a sort of "I'm writing to people just like me about those other people, the ones not like me but who believe like I do so they're okay" type of tone. This narrow viewpoint may be partially due to the expected market/audience for the book - predominantly Evangelical or even Fundamentalist Christian or a Protestant Christian who have conservative political and economic leanings, but I believe the authors themselves would indicate they want to reach out to as many people as possible with their ideas, especially those who consider themselves Christian, conservative or not. That larger group includes a lot more diversity than what's represented in this book. Christians are African American, Native American, Asian, Latino and much more. Our skin color is all shades. Our heritages are from many different places not just Western Europe, so it really bothers me that there was such a lack of diversity presented. That's not the "confetti" I want to spread in my household.

2. Special needs unrepresented

This really goes hand in hand with my number 1 of what I didn't like in the book. Many families have unique situations, not just autism, but many other special circumstances which require them to plan and carry out activities very carefully in order to best serve the needs of their whole family. I never felt there was even a thought of "how will this actually fit in the family confronted with special needs every day?" Specifically, I think of autism and sensory integration issues that were completely ignored (because, of course, that's the world I live in). It's as if the writers never even had a thought that many families (potentially 1 in 61 these days according to the latest CDC numbers) may be struggling to celebrate any holiday at all in the midst of a sensory minefield. This misses a huge segment of people.

There are at least 20 ideas or more that are deal breakers for those with autism or sensory integration issues or both. It was never suggested anything be toned down. Nothing was presented that would tell readers the authors understand many people can't even approach any celebration without serious anxiety.

While there are plenty of recipes in the book, there's no mention of any that might be suitable for families struggling with food sensitivities or allergies. If you're an autism family attempting to follow a gluten free lifestyle, you will have to adapt these recipes on your own. Vegetarians and vegans likewise do not exist in this world the authors discuss.

3. No photos, not even one

I'm not sure who made the call on this one, authors or publisher, but I don't agree with it. Photos help people understand what you're presenting, especially when you're talking about decorations and holiday ideas. If they were trying to keep the purity of thought so that readers could imagine the idea more effectively in their own family, I guess I can see it somewhat. But what about all those recipes? Perfect opportunity for some yummy looking photos! (Please understand I HATE cookbooks without pictures. What's the point if I can't see how it's supposed to turn out?) Mostly, however, the lack of photos in this instance comes off to me as a cost-savings measure in publishing. Also, when the book is pitched as Pinteresty idea book, then the lack of photos seems silly.

4. Every day is a holiday or special occasion

While I do like the idea of living with more intentionality, I'm not sure I'm all on board with the idea of making every single day some kind of a special day. I recently finished reading A Thousand Days in Venice and while the author of that book is preparing for her upcoming wedding, one of her vendor's tells her that a little suffering (or a little misery) brings out the sweetness of life. Later when the author reflects on how perfect her wedding day and life is at that moment, she thinks about how grateful she is for that little bit of misery or suffering which also occurred because it truly did make her more aware of when life is sweet.

The authors state at the beginning, "Our desire with this book is to spark your creativity and provide you with ideas for planning and implementing wonderful holiday and holy day celebrations with your loved ones. But we don't want to stop there. We hope that with a little ingenuity and a slight shift in your spiritual perspective, you will learn to toss a little confetti into the everyday too - to be on the lookout for days and ways to make the ordinary extraordinary."

When I mentioned the idea of making every day more filled with confetti, Lotte (almost 18 now) said, "That's stupid, Mom. If you make every day special then you won't even recognize the specialness of the days you really designed to be special."

Too much special, too much of a good thing leads to a lack of gratitude in my eldest's eyes. I'm not sure I completely disagree. I do think an additional sense of embracing the magical and the special of even normal days is vitally important. Finding joy in a sunset, the beauty of a child's laugh, the amazingness of a child speaking words they've never spoken before... However, even King Midas learned that too much of his favorite thing was just plain greedy and actually led to more discontent. The key is balance I think.

Overall, I give the book an OK to Good rating. I think there are some good ideas, but as a Mom with two children with autism, it will require a lot of adapting to fit any of the ideas in our home. Honestly, I'd probably be more interested in a book that addresses celebrations and how to really enjoy them while minimizing the meltdowns, explosions, and emergency situations they can bring on. And, while the ideas are good, I'm not positive some good Pinterest research wouldn't provide you the same result complete with photos. A quick Google search led me to another book I'll be adding onto my reading list & hopefully reviewing as well.

Want to see more book reviews? Well, I love to read, so comment with suggestions and I'll add them to my list. I'm always reading about eight to ten books at a time. Have suggestions for great books for autism families? Please comment with those ideas too!

Tuesday, September 2, 2014

Kindergarten for triplets

Our Level 1 road is currently down to one lane for resurfacing.
The Kindergarten triplet first day of school pictures didn't happen. I mean they didn't happen as a group. And that's a big day for triplets. And it's the reason for wearing matching outfits in the first place, right? The picture? The picture of three cute little girls all holding hands with their cute little backpacks on... yeah, I don't have it, maybe we'll try again tomorrow. 

In the midst of road resurfacing which has taken out the whole far side of our street (don't ask me how I'll get out of my driveway later this afternoon to pick up girls from school for therapy), getting three littles ready for two different bus schedules, accommodating the brand new "cold turkey" potty training approach which eliminates the safety net of pull-ups for any daytime hours for our two with autism, the following photos will have to do for 1st Day of School shots.
Angel triplet
More Angel triplet

Princess triplet says NO MORE PHOTOS!
Princess triplet

Sunshine triplet
More Sunshine


Monday, August 25, 2014

One in college and three entering kindergarten

Today is a big day for me, but a bigger one for Lotte. No tearful college dorm drop-off this year since she's spending her first two years at a community college. 

She will move out and live with her dad soon though. It's closer to college and out of some of The Tripped Up Castle craziness, which will make it easier for her to focus on classes, lessons, practicing, rehearsals, performances, and a job. Not to mention the whole, making new friends and "figuring out the rest of her life" as she puts it.

I don't want to say a lot about today because I don't want to get all teary again. (I think I've done enough of that all summer long). I'm still amazed at this girl, this wonderful, nearly perfect in every way girl, who is all grown up now. 

She's awesome. She's compassionate, loving, kind, talented, smart, and hopeful. She really is on her way and going to all sorts of fabulous places. (And hold onto your hat because the little three go to kindergarten next week.)















Friday, August 22, 2014

Autism milestones that make a daddy smile

Angel triplet hops into our bed this morning. Tripped Up Daddy reaches over and gently pinches her nose.
Daddy: "beep, beep"
Angel triplet: "Nose!" <laughter>


(We promised "Daddy rants" a long time ago. This is one, stolen from his own Facebook status. It was just too good not to share.)

Wednesday, August 13, 2014

Continuing the "Our Autism" conversation

Huffington Post Parents and Autism Speaks just published a post by Jessica Watson, of Four Plus an Angel, and it's wonderful! I've posted links to it via my personal and blog Facebook pages, but thought I'd bring it up here on the blog specifically as well. Jessica says she wants to encourage people to share what their autism experience is and I think it's a marvelous idea.

I'm including an excerpt of the article, a link to it in full, and my own response below. I'd really like to see more conversations started at any of these sites about what autism looks like for all of us.
From Jessica:
Since the beginning of my life as an autism mom, I have been surrounded by versions of what people think autism is. Well-meaning onlookers have mentioned that my daughter doesn't count 5,000 items in 30 seconds like Rain Man, or memorize the name of every U.S. president like that one other person with autism they know. In the early days of her diagnosis, some questioned it so much that I questioned it myself, even though we were given the label by a nationally known autism expert who just happened to be a short car ride away.
But here is the thing: Our autism is not their autism, and it's not your autism either. There is a saying out there that autism parents like to use because it is so very true:
If you've met one person with autism, you've met one person with autism.
In an effort to help other autism parents feel more comfortable embracing how their children's autism is very similar and very different from others', I wanted to share "our autism" with you and encourage other families to do the same. I hope opening up the conversation about what it's really like helps others to stop judging from the outside looking in.
This is our autism:
Our autism is nonstop episodes of the Food Network and knowing every bus route within five miles.
It's visiting restaurants because Guy Fieri has been there and praying no one bumps into her plate.
Please enjoy the rest of Jessica's post here.

Here's a small glimpse of what our autism looks like at The Tripped Up Life castle:

Our autism is making sure all plants in the backyard are non-toxic because you can be sure she'll be eating every one of them at some point. It's trying desperately to stay in front of the hyperactivity and mischief that results. It's trying to draw out another girl from her quiet spaces. It's offering plenty of places for jumping and running and swinging. It's being forever flexible and yet very, very planned. 

It's watching the mystery of having triplets - 2 with autism and 1 without - and also realizing that their triplet experience is so completely different than what typical multiples experience. It's realizing the promise we got from others, "triplets really start getting easy at age 4" has had absolutely NO bearing in our world and we really don't know when triplets will ever start getting easier. 

It's hearing a little voice saying "Mwah" and feeling your heart squeeze as you give her the kisses she's asking for. It's hearing Fefame Feet (Sesame Street) requested for the 15th time today and still just being excited because it's an actual thing you KNOW she wants and it's clear enough that even Grandma can understand it. It's hearing songs being sung and melodies chanted constantly but hardly ever hearing either of them say Mama very often. It's hoping that pull-ups will no longer be part of our world someday and yet being grateful they're brushing their teeth, getting dressed and usually using utensils to eat. 

It's always feeling like you never get a chance to simply enjoy the wonder of childhood with your neurotypical triplet and yet having moments of pure joy when you see all three truly enjoy being together. 

It's more than you ever imagined, fuller than you could have dreamed, and a constant study in contradictions.

Friday, August 8, 2014

Attention: Tooth Fairy!

Sunshine triplet is ready for her first visit from you! Tripped Up Mommy and Daddy are curious about the going rates these days. What exactly should our little girl expect to get from today's Tooth Fairy?

Showing off the empty spot. The permanent tooth is already in.
Neighboring tooth is almost out too.
The prized possession.

Tuesday, June 11, 2013

Lots about Lotte

If you're a newcomer to the Tripped Up Family you may have the idea that all we talk about is triplets and autism. In fact, I heard that same comment from my teen a few months ago. Can you say OUCH?! After that comment, I've been making a conscious effort to minimize the amount of time my teen hears me talk about autism. It's not like there's not plenty to talk about in her little area of the world too.

New York trip
Top of the Rock
Lotte enters her senior year in high school in the fall. My eldest - my only for 12 years - my first baby girl will be heading off on her own very soon. You can imagine all the plans and busy-ness we have going on right now. She is 1/2 way through her driver's license coming of age process, working a summer job, taking the ACT test, auditioning for theater productions, and starting college applications and planning college visits. She just got back from a drama club trip to NYC over Memorial Day weekend and, of course, had a really hard time coming back home. They saw two Broadway shows, Newsies and Once, participated in two Broadway workshops, and enjoyed Manhattan, Chinatown, and more. For the mom who's never been to NYC, I'm still jealous.

Superhero fun
Central Park
Her recent audition earned her the Soupy Sue role in Urinetown the musical playing at RHS on Aug. 15-17. I've collected some photos of what else is up in her world. She's busy enough that sometimes I think she actually lives at school, not at home. I wouldn't change any of it for the world though. (Please visit Gayla's page to see other photography work.)
March Hare in Alice in Wonderland
Credit Gayla Fox Photography
"You enjoyed our singing!"
Credit Gayla Fox Photography

Sweet 16 - A woodland tea party
Footloose - An adult in midst of church scene
Credit Gayla Fox Photography
Cinderella's Mom in Into the Woods
Credit Gayla Fox Photography

Sleeping Beauty in Into the Woods
Credit Gayla Fox Photography







Thursday, June 6, 2013

Little Keeper Sleeper - Review


What the Pinkalicious room is supposed to look like
when trundle is pulled out and 3 girls sleep there.
Notice the lack of "brown art" - it's by design.
I'll never forget the first time it happened. I don't even know what to call it. Diaper exploration at naptime? Brown art? Creative painting? (Actually I've since learned the official word that doctors, therapists, behaviorists, teachers, and others use is smearing).

The problem


Last summer while all 3 of the triplets were off school, I DESPERATELY needed them to take afternoon naps or at least play nicely in their bedroom without my intervention. Maybe even play long enough until they eventually fell asleep for an hour or more. I got used to the idea that "napping" really sounded a whole lot more like jumping on the beds. It didn't matter, I needed the time. What I ended up with was not "naptime,"  however, it was more like playtime at the zoo and left a decidedly barn-like smell and sight. The once pretty pink room, complete with sun bonnet quilts, pink drapes, and all manner of stuffed animals and books, had been streaked indiscriminately with brown - EVERYWHERE.
Angel triplet shows off her flute
to Tripped Up Daddy while wearing
 her cozy Little Keeper Sleeper.

I wish I could say that it only happened once or that it only happened with one triplet. Unfortunately, we had different variations of it with both Angel and Princess triplet. Princess tended to smear if she could get to her diaper area, while Angel just wanted to be naked and wasn't getting the idea that a potty chair should be used instead of bed, floor, chair, rug, etc. All attempts to outsmart them were failing, and we still had three weeks before school would start back up again. I thought I would lose my mind. I sought advice from everyone and learned it's not an unusual occurrence for even neurotypical toddlers, but can happen more often and for longer with kiddos who have autism or sensory integration issues.

The solution


Princess: We used a lightweight, footless sleeper put on backwards so the snaps were in back where she couldn't reach.  We were able to find a cute one at The Children's Place. Since she only needed at nap time, we could get away with just one sleeper. (However, after a mishap last night, Princess triplet will most likely be getting at least one Little Keeper Sleeper of her own.)

Angel: The Children's Place sleeper failed with her because she could stretch it out and shimmy out of it. In fact, she never unfastened the tabs on her diaper either, she simply shimmied that down as if it were a pull-up (no matter how tightly they were fastened). We finally broke down and bought two specialized sleepers for her, after a week, we purchased two more.

Back full-length zipper, 3 snaps,
and non-stretch neck

Little Keeper Sleeper


At $25 a pop for a simple sleeper, you might think we're a little free with our cash here in the Tripped Up Castle, but honestly I'd do it all over again - and I have, more than once. The Little Keeper Sleeper is not just a simple sleeper, it's a major stress reliever because of its patented design. The soft jersey knit cotton makes your kiddo comfy and the backside zipper is secure. Topping off the zipper are 3 ingenious snaps, guaranteed to keep even the most masterful child from unfastening it. For me, the best part is its non-stretch neck. With a mechanical genius like Angel triplet, she's learned to shimmy out of almost any clothes at all by simply stretching out the neck. (This is the same child who only recently was still able to squeeze her body through a kitty door and get into an area of the basement that's not child-proofed.)
Cute embroidered bear on left front

The Little Keeper Sleeper is perfect for special needs kiddos like mine who haven't mastered the judgment calls of potty training yet, but have the skills to make a mess. It's offered all the way up to a size 10 and in two different striped colors. They also offer three different styles - long-sleeve, footed; long-sleeve, footless; and short-sleeve, footless.

The feet wore out WAY TOO SOON!
Before you think this review will be nothing but glowing, I do, indeed, have some issues with the Little Keeper Sleeper. First, don't bother purchasing the footed style. We purchased two of that style and within 3 wearings the non-slip grip on the bottom had snagged and with a little more laundering the feet were an absolute mess. I never complained to the company about it because everything else was working great, and I knew how to easily put ankle ribbing on to make them footless sleepers. The other issue I have is while it is a lightweight cotton sleeper, it's still not the greatest option for 80 degree weather, and unfortunately, summertime does not mean an end to the behavior. Even if they offered a shortie version with tight shorts that ended just above the knee it would be helpful for the hot nights. Lastly, although the striped sleepers are cute (and certainly better than the original plain light gray color - can you say convict?), it would be nice to have other color/style choices as well.
White cuffs at ankle
work just fine,
after feet wore out.

For those of you who are saying, "why don't you just potty train your kids, then?" Well, it's not exactly that simple. This is part of a long process. We will be potty training soon, but the process will not be easy or work the same way as with neurotypical children (which, by the way, wasn't at all easy with Sunshine triplet anyway). We're going to need the support of our ABA therapists, OT therapists, speech therapists, and teachers as we work on these daily living activity goals like toilet training. In the meantime, we have to avoid poor judgment situations for our own sanity.

Overall the Little Keeper Sleeper gets a thumbs up from me and if you have a similar struggle I definitely recommend purchasing one or more (just not the footed style). Are there other homemade options out there? Sure, duct-tape the diaper, put diaper on backwards, cut feet off other footed sleepers and put them on backwards, put diaper on backwards then duct tape it, then put a swimsuit bottom over top of it all - there are plenty of ideas. I like this one because it's a streamlined solution made for the problem. And, we NEVER have an issue if Angel triplet is wearing her Little Keeper Sleeper - that's definitely worth it to me.



*Disclosure: Little Keeper Sleeper has not provided me with any money or product for this review. This review is simply my perspective after using a product that's helped make the Tripped Up Castle a little more happy and a lot less stressful.




Wednesday, May 29, 2013

Errands with the kiddos

Even on good days a trip to the grocery store can prove disastrous with kids. When you add in multiples and also special needs, it can be really trying. So trying, in fact, that today I shot out a tweet - almost in fear:



No, not from today, but it is 2 triplets
& they are in a cart.
Don't get so picky about details!
As it turned out, the trip was probably the best we've had in a long time. It was just me with Princess and Angel triplets, and we spent over an hour in the grocery store with absolutely NO meltdowns to speak of, no major challenges at all. The only thing I can identify that may have made it easier was being able to spy one of the big, 3-kid-seat carts in a cart return. Of course I parked the van as close as I could, grabbed it before getting the girls out of the van, and moved them into that directly from the van. That saved us numerous transitions, which I really was worrying about as we were driving into the lot. Beyond that, the free bakery cookies helped, but mostly the girls were just in really great moods. They were pleased to be out of the house and somewhere different and were excited about the sights around them. That doesn't mean the sounds of carts moving around, the electronic alarm going off or the bottle return noise (from 3 aisles away) didn't adversely affect them. We still had fingers in ears & hands over ears even while 3 aisles or more away from the sounds.

They continued the good behavior by playing quietly once we arrived home so I could even unload the groceries in relative peace. Are they getting older? Are they just becoming more used to their surroundings? Maybe, or maybe we were lucky and hit everything right on. In any case, I absolutely know that it could have all gone horribly wrong in 2 minutes or less.

Then an even more surprising thing happened. Meijer replied:



How do you like that? One of my regular grocery stores wants to know how they can help make a sometimes very challenging experience better for my daughters. I'd say that's good customer service! Since it was only a day after a huge firestorm erupted after word got out about a Kalamazoo salon owner berating a customer for not controlling her autistic son as he received a haircut, I'd say Meijer looked pretty family friendly and proactive today. And trust me, I don't always give them credit for those two things.

Anyway, the question, "how can we help you," prompted me to wonder exactly how to answer back. It also made me wonder what other folks like me do with the basic errands of life. You know, people like you. How do you involve your autistic (or special needs) children without feeling too much apprehension? How do you plan for a great time? Or is it simply beyond our ability to control and we just take what we can get, smiling when it's good, crying when it's bad? I asked for feedback on my newly created Trippeduplife.com Facebook page too and am waiting for responses. I'd love to get some feedback that I could actually give to Meijer. How could they make it easier for kids with autism to feel comfortable in the shopping experience? With 1 in 88 kids being diagnosed with autism, it's worth knowing. Besides, I think it's important to reward companies when they start asking the right questions.

So stop by the Facebook page, like it & reply. Or, just comment below. Let's get some answers out there, because somebody wants to help, and I don't know about you, but I don't always feel that kind of love when I'm out with my autistic kiddos.


Monday, May 20, 2013

Time for Tears

Today many in the autism and special needs community are honoring the memory of Mikaela Lynch
by publishing supportive blog posts for her family. Mikaela wandered from her home on May 12, Mother's Day, and her body was found on May 15 near a creek where she drowned. Mikaela had autism and the family, like many others in the autism community, struggled with autism elopement and various sensory concerns with their daughter.

My heart goes out to the Lynch family. I have two daughters with autism and I understand the constant fear of "what if they wander?" I understand the constant struggle to keep clothing on children who struggle to feel okay in their own skin, let alone skin that's covered with clothing. The Lynch family had Mikaela to love for nine short years, it was too short and they are grieving a horrible loss that no parent ever wants to face. Unfortunately, they've also had to face a lack of understanding from the media from day one in this horrible chain of events.

I am reminded constantly today of a song that I love, by Charlie Peacock - Now is the Time for Tears.

Now is the time for tears
Don't speak
Save your words
There's nothing you could say
To take this pain away
Don't try so hard
You can just simply be
Cry with me don't try to fix me friend
That's how you'll comfort me

Heavenly Father cover this child with mercy
You are my helper through this time of trial and pain
Silence the lips of the people with all of the answers
Gently show them now is the time
Now is the time
Now is the time for tears

I don't know the Lynch family. I don't know their religious beliefs or even if they have any. I do know that the last 8 days have been the worst days in their lives and the media hasn't helped. Today, I cry with them. Today, I support them in their love for their daughter and in this debilitating blow that is their worst nightmare come to life. I do think they'd appreciate the comfort of simple tears, simple support, simple hugs, simple love - and I hope they receive that all today and for many, many days to come.

I've also learned of two other children with autism who wandered from safety this week and were found later dead. Autism elopement is a real issue and as a parent of autistic children, I'm astounded by how little we talk about this issue in the community, in the press, even in the therapy office. I think I've been hoping my two little girls will simply "grow out of " their desire to wander, but I'm beginning to understand this type of constant vigilance may simply be my life.

I also learned that there are tools out there that may help parents like the Lynches and like myself with this important safety issue. If you worry about your special needs child wandering then you may want to sign up for a Big Red Safety Box to help you.  If you don't have a child with special needs, but would like to help others who struggle with the wandering or running issues, you can help by making a donation to the Big Red Safety Box grant program. Today is the day for our communities to come together and support families who struggle with these kinds of safety issues every single day.

No one should ever have to endure the type of Mother's Day the Lynches did this year. Mikaela Lynch was loved, of that I am sure. Mikaela Lynch's death was a tragedy, and I weep for her family. Now is indeed the time for tears.